The Rheumatologist appointment Friday left much to be desired. The
doctor was in a hurry because they were busy, and his bedside manner was
horrid. He didn't even do a full body exam ( me being a brand new
patient he'd never seen ). He was dismissive and condescending and
didn't listen to anything I had to say. My mother was with me and she
tried to keep interjecting as well. He handled me very roughly the whole
time, despite realizing as a Fibromyalgia patient I experience a lot of
pain on top of normal pain people feel. He wasn't taking anything
seriously, and it wasn't until I insisted he look at my feet, took my
shoes and socks off and he saw my feet and ankles and how bad they were
that his attitude changed at all.
He ordered autoimmune
bloodwork, but I am worried some of it is the same testing I have had
done a million times before, which will come back negative as the belief
is I am sero-negative. I expressed this concern to him asking to go
right for the biopsy instead because I know bloodwork will come back
negative and because I am paying out of pocket, NOT through insurance, I
am trying to save on costs of unnecessary testing because that is all I
have dealt with for years. I am sick and tired of being ignored because
bloodwork "looks okay" yet present multitude of symptoms that do not
improve, but have only gotten worse over time. He brushed off my
concerns and said we had to do those tests first. I am waiting for the
results, should have them next week. If they are "okay" ( which is
typical of my bloodwork over years of dealing with this ), then my next
appointment isn't for another 3 months. Otherwise they want to refer me
to a dermatologist for my skin issues. I am hesitant to think anything
helpful will come from it.
The only remote good thing of the
whole experience is that I was right on one self-diagnosis all along. I have De
Quervain's tenosynovitis in my injured wrist. He squeezed it and it hurt
so much the way he did, I saw red and it started to trigger my
pre-syncope symptoms.
He'd actually gone on with the other stuff
at first and not even bothered to tell me anything about how to treat my
wrist and had ended the appointment before we were even finished, and
we had to call him back into the room and say "Okay, well what am I
supposed to do for it?" He tells me do do the same thing I have been
doing for months, and at this point I am furious and frustrated from his
dismissive attitude during the rest of the appointment and I snapped
that I *HAD* been doing that with little improvement and was sick and
tired of not being able to function with that, on top all the other crap
I deal with.
He finally decided to give me a corticosteroid shot
into the wrist / tendon sheath and oh my gods did it hurt from the
pressure going in, but it had a numbing agent mixed in, and after the
initial jolt my whole hand went numb. Was told not to use it for up to
48hrs. Easier said than done, but I have taken it easy since.
I
am really of the mindset to file a complaint about how poorly I felt
treated as a new patient seeing a strange doctor for the first time, but
I am not sure who to file the complaint with. I only saw him
specifically because a friend recommended him and liked him, and since
she is sero-neg I figured he might have further insight and actually be
able to help me. But all he succeeded in doing was upsetting me more
than I was already upset to begin with.
I'll wait and see what
the test results say this week, but I am feeling like it was a waste of
time and waste of money that could have been spent with a Rheumatologist
that would actually listen to everything I had to say and give me a
proper exam, since you know, I am *paying* for it.
So now I need
to probably find a new Rheumatologist that I can go see. It's really
infuriating having to "shop around" to find a good doctor and not have
medical coverage, because the cost of appointments on top of actually
waiting for appointment openings is insane.
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