Tuesday, April 1, 2014

ER Visit, Service Dog Public Access Issues, Medical Roadblock

Spent the whole day and evening at the ER, a total waste of time because I got nothing accomplished.

After weeks of trying to get in to the LSU Interim Public Hospital by calling the number I was given for "primary care", and being told "sorry, we don't have appointments available for primary care" and "call back next week to check", I finally got fed up with it and decided to try going to the walk-in urgent care clinic I was referred to by the small clinic that "carded me" for Ember.

Had to park at a garage blocks away from the building which was a pain to begin with. It's warm out and I am in pain and overheating. Thank the gods I had Ember and my ankle brace on. Ended up wandering from place to place because nothing was clearly marked and there was road work preventing ease of access. Only to be told "not the right place, go here instead" three times... and finally the last one was where it should have been... and they tell me to go across the street to the ER.....yeah, right then I knew it was going to be a nightmare.

So trudge up the ramp, exhausted and sweating like mad by this point from overheating. Grabbed the support handle on Ember's harness and gave her a pull command so she could help me up the incline. Noticed a security guard watching as we approached ( most places in New Orleans have them these days ), smiled and nodded, waited for a gentleman with a cane to go ahead of us, giving Ember clearly audible commands to wait and follow and the security guard extends his hand and says "Can I see papers for your dog?" and I am thinking - ( you see her wearing a red vest that proclaims "service dog" and you just watched her pull me up the slope/hill to the ER entrance )

I responded as we were walking by saying "She's a service dog, she's allowed to go anywhere I can go" and he asked again for "papers for the dog". I told him by federal law I wasn't required to have any and he wasn't permitted to ask, repeating she was a service dog. He got an attitude with me saying "Oh, so anyone can just walk in here with a dog and claim its a service dog if they want huh?"  I'm sure the frown and expression on my face probably said enough because someone who overheard rolled their eyes at the security guy. I responded "No, because lying about a pet dog being a service dog is against the law."

By this time I was a little aggravated and already dizzy and nauseated and the confrontation had drawn the attention of the entire ER waiting room with people staring. I again repeated myself that she was a service dog and by federal law I was not required to have any documentation for her, and he shrugged and said "This is a hospital, do you have papers or not?" taking a step closer in a way that made me think he was about to force me to leave, so once again I was forced to present the card I have with the ADA statute, stating I was doing it voluntarily and denying me or anyone else with a service dog could get them in trouble, "papers" or not.  He glanced at the card briefly and handed it back, muttering something about "not denying anyone treatment" and allowed us to proceed.  He wasn't even interested in hearing the actual law, like that other clinic I went to was (the one that "carded" Ember). He was just being a jerk. Which is why I am sorely tempted to get in contact with the right people and report the incident so no one else experiences worse harassment than what we experienced in the event they don't carry anything ( or forget to bring it ) to identify as a service dog team.

Then it was hurry up and wait. And wait. And wait. Hours later we moved to another waiting room. Then hours later, finally got a patient room, and finally saw the doctor and got xrays of my wrist. All the hospital staff I interacted with were amazingly polite and helpful, no complaints about any of them. They all had nice things to say about Ember and how well we worked as a team, which was refreshing after the jerk security guy and nightmare wait. The nurses and doctor were very nice and the xray technicians were all full of laughs and everyone kept peeking in to "see the dog" and go "aaaawwwwww" which was amusing.

So besides the wrist xrays, total waste of time. They confirmed I don't have any broken bones at least, but since this problem has not healed in the time expected, they put in a referral to the hand surgery center for a followup with a specialist to see if they can do anything else before resorting to surgery.  I asked the doctor about also getting a referral to primary care since I had been waiting so long to see someone.

She told me they don't have the ability to refer me to primary care, because for whatever stupid reason, that privilege was removed from the ER and many other departments. She told me I'd have to call in, to which I sighed and mentioned I had already tried. There are only two numbers to call, both directing to the same place. The same place I have been calling. That keeps telling me they have no openings for primary care, keep calling back. They don't have anything available till June or July. I told her I had been trying to do this since November.

She was sincerely apologetic and said she was glad to know that, because she planned to bring it to the attention of whoever decided to change the way they admit patients for primary care. Because the "new way" was supposed to make things faster, and it clearly is not.  I'd hate to know how long it took *before* now.

Maybe I got spoiled by Mayo Clinic, but after overhearing horror stories of how long others had waited ( including one poor woman who had been shot multiple times some time ago and had bullets lodged and surfacing and was clearly in pain having been there since 8am-ish ), I get the impression their whole system is screwed up.

The same is confirmed by a friend of mine knowing someone who just recently went to one of the clinics, and was waiting months for the appointment despite having diabetic complications of some sort.

So right back to square one with no primary care doctor or specialist under this temporary care thing, and since I was denied medicaid and now have to appeal for a hearing and probably go to court for that ( more on all that later ), I am at a loss.

With the increasing possibility I have had a seronegative autoimmune condition this entire time that was masked by the fibromyalgia, I really need to get in to see a rheumatologist and hope the possible years of it being missed haven't led to damage that could have been avoided if all these doctors hadn't just settled for lab results when the clinical symptoms were obvious and repeatedly questioned by me but brushed off by them because the bloodwork didn't "match".

No comments:

Post a Comment